October 14 2004

Well this year has been quite the adventure for me. I have learned so much about life and love. Life is something we take for advantange and love is something we also take advantage of . Well we are right on some things but never take advantage of anything because one day it is there the next it is gone..I am doing well a little sore but still working on getting better. My test results came back that there was a small leak at the bottom of my pouch causing an infection pocket that was building. So good news no crohns and nothing else. A ton lifted off my shoulders. Damian and I have went our seperate ways due to a few differences I wanted a family he wanted a single life. So now its about my health and my children. Them are the important things in life and no more messing around with finding that perfect person. I have been having problems now eating for the last month or more to the point I am gagging or feeling full all the time. I have eaten about 4 meals since I have gotten out of the hospital. I am drinking alot of fluids though which is keeping me strong along with shakes to give me what I need. I will be calling the dr soon to get another appt. Just to do the check up again. The tube has been going in pretty easy only a few tough spots. The weight loss has been about 32 pounds now .  But I am sure after everything is settled in our new house and the stress of moving is over things will become normal again. God Bless you all and thank you to everyone for helping me out.

Sept. 14th 2004

Well hello to everyone. I am back and doing pretty good. My surgery went pretty good we did have a few problems but nothing to bad. My pouch was pulling away from my skin. It seems there was either an reaction toward the staples back from my 2002 surgery that was causing a cement like substance to grow around my pouch to strech it. Or I may have Crohns. The Dr. was not sure but he did take some samples to be sent away and I will recieve my results back On Sept 29th when I go back to see him. My recovery time blew my mind. Belive me when I say WOW I went fast this time. I was out of the hospital by day 6 and feeling well enough to go out with my friends by day 11. Mind you I was still attached to my pouch on the side but they dressed me up and found a cute little purse to hide my carry pouch in. Belive me when I say I had alot of body guards that night proctecting me from being bumped. My staples came out on Tuesday morning 1 week and 1 day after my surgery 52 of them. Holy cow it hurt. But it is done with now. I do have a small infection in the upper insion but it is draining by itself but is causing some discomfort at night mainly. I had alot of great nurses this time and Dr's too. One nurse blew my mind at the care that she gave me all I can say is thank you Cid. You know when that one special person helps you and you always remember her name. Well she was one of those.Damian accepted well to this surgery he stood by my side all the way cheering me up and helping me up. He made laugh all the time which you know as they say laughter is the best medicine well he did it. Thank you to all my friends and family for their support and love threw this time God bless and I will keep you posted.

July 16th 2004

Wow once again time seems to be flying. Well my surgery date was moved to September 20th. Which is actually a great thing. With summer and the kids it has been busy. They have been with their dad off and on since june and they seem to love the break away from me. LOL but thats ok cause belive me mom needs a break too. Its amazing how much they grow and how fast they do it. My daughter will be 12 in Oct. and my son will be 11 in Dec. They both passed and for their passing their dad took them to Marine Land.Wow did they have a blast. My stomach has been ok lately but the pain gets pretty bad sometimes. Good old Advil does not seem to cut it anymore.But soon enough it will all over. Well on the good note... Damian gave me a beautiful promise ring last weekend and I am so happy that my life has some good things to it. Also I recieved a phone call on Thursday from my lawyers office called and Court is coming up on the 13th of Sept. Things are finally getting rolling. I will be glad when this is all over. Anyways god bless everyone and have a wonderful summer.

May 11 2004

Wow Time flew again. I look back and holy cow I cannot find it. Well here we go again. Surgery is booked for July 19th I have a cat scan on May 31st. The dr did a scope and found that my pouch is streching and making it very hard for my tube to be inserted and quite painful. I am not 100% sure on how this has happened but once I do know I will be sure to keep you posted. I am a little scared but I think the cat scan scares me the most because of the stuff they give ya before you go under. The main part that scares me is having to go threw this all again. The pain and the walking and the coughing. And I am not sure yet if I have to have the tube in for them long weeks again or if it will be like it is now. I have alot of unanswered questions but I will be sure to find them out sooner or later. Ok well now I will not take so long inbetween posts and I will do my best to keep everyone updated. Other then that life is great even know not everything is perfect I am not to worried. Life only goes day by day so.......

Take care god bless

April 5th 2004

Wow how time flies. Things have been good. I was having a hard time there for a bit with a hard time draining my tube. But I stopped the milk of Mag. and the sodium D and it seems to be working well. I have been daring lately and eating salads and a few other items that I would not normaly try. And thank god it is working well.  Damian has kept me on my toes watching me and making sure I am eating and keeping care of myself. You know I have noticed the less stress the less I am sick. I remember when I had Ulcerative Colitis I was always sick and when my ex and I fought it would get so much worse. It is nice not to have to worry about that anymore.  Now if the could come up with a cure for stress I think we would all be better off. Anyways just a short post this time because other then that everything is wonderful. So god bless you all

March 6th 2004

Well theres so much to catch up on.... Where do I start.

I have no kidney stone and it seems there was never one. The second time I went back to the hospital they ran xrays and found a loop in my small intestines. So they told me I needed an ultra sound in the morning and sent me home. I returned home that night to have alot more swelling in my tummy and alot of pain from the pressure of it . I went for my ultra sound in the morning went home did my drain and found blood in my tube. Oh my goodness I was horrifed. I called my work to take the day off called my family doctor who told me to go to the emergancy room right away and called my Dr in london to tell me strict orders on what to do. Milk of Magnisia (Laxitive) and some other sodium pills (laxitive) Clear fluid diet and rest. I was totally constapated and nothing was coming out of my tube unless I was bearing down like I was giving birth. I had alot of pressure in my rectum... Thats not there..... And cramping. He told me if it gets worse or does not get better I am to go to the emergancy room in London ASAP, For those that know me I am very stubborn and sometimes it gets the best of me. I hide the pain very well and I always try to work it out at home. I hate hospitals now I hate needles and the last thing I want is to be away from my children because I am sick. But I also know that I need to becareful because if I ignore it it would be bad and it could be I will not be around for my children. But I am scared like everyone would be and I do need to be truthful about the pain. Well its now 2 weeks since I have been sick and the swelling has went down and I am starting to eat hard foods but I have noticed that my tube is so hard to drain if I do not take the laxitives I cannot drain at more. There still is bleeding but not much. And the swelling did go down but not all the way. I am seeing my Dr in London in April so I am hoping I can hold it off till then. I am not going to push myself and I am really trying to get better without surgery or more meds. So now its wait and see. I did relize though here in Stratford the Dr.s know crap about this surgery along with 90% of the nurses. It is a shame though that they do not even try to learn about it. But the plus side is when they come in the room and touch your tummy and ask you hmm wheres your ileostomy??? I can look at them and laugh and say did ya read my chart? Or say its right there.... "right where they say" right here. ... I point and they say " ok I have no knowledge of this surgery so I am not going to touch you. Once again I laugh at the people that do not even try to learn. Also I do have a new page up about others with stories. I have one up there now from a wonderful lady in the US  Terri . She was kind enough to allow me to share it and for those out there that also want to share their story please email me and let me know. I will keep you all posted on my health the best I can so one again god bless and take care.

Feb 20 2004

Well I found out what the problem was it seems I have a kidney stone. I was rushed into the hospital yesterday one minute I was talking to my little sister never thing you know i am clutching my right side and falling to the floor in pain. So after a few minutes of debate I decided to go up. So after a few blood tests and urine samples it seems I have been getting a little dehydrated and it has been bothering my kidney's. So the verdict is in and they seem it is small enough that it should pass on its own and that is why the pain is not to bad. But on my side WOW it is a little painfull and I cannot wait till it does pass. He said though if it does get worse I am to go right away no debating. Because then it will need surgery.

Feb. 2nd 2004

Wow another year gone by and look at that 2004 .... I hope everyone had a great  Christmas and A great New years eve. I know we all did here. We are in alot of snow right now. I decided to take the dogs for a walk what i did not know is the snow was up to my knees in the feild.. Yeh wrong ideal. I was blessed with no sickness's over Christmas but I tell you in the last month I have payed for it. My tummy has been all messed up and I am not sure if it even knows what it is doing. I am getting alot of pain around my stoma area along with swelling  and alot of gassy noises. Some days I can do a drain other days theres no Chance. I am seeing Dr Taylor in Feb 10th so I am bearing with it till then. I am seeing him for my hernia so he can remove it. I just wanna get it all done. But also so I can make sure my tubes and everything are ok. Cause I still have babies. Ok well take care and God Bless you all. Remember keep smiling.

December 17th 2003

Wow how time fly's to think Christmas is only 7 days away. Things on my side are great. I have decided that after Christmas is settled down I am going to go in to have my hernia removed. I am hoping that while I am under he can take a look inside to make sure everything is good. Damian is scared but has said he is behind me 100% but still is worried. I have reinsured him that this is the easy surgery. He has never dated someone before that has had so many surgeries so he has alot of fears. All I can do is keep letting him know that everything will be good. I am not worried though well other then the little things. I have used all my pay checks to buy Christmas presents for my family and Damian and I  have decided that we will not buy anything but one present for each other but then after Christmas we will take ourselves away for 2 days. I want the kids to have the best Christmas ever.  Its been one year out of the hospital I am happy to say I have worked though it all out of there. The blockages I have gotten have worked there selves through and here I am . Were spending Christmas eve with Damian's family in London Ontario and I am excited. They have now accepted me and the children into his family  that was the only Christmas Present I ever wanted. His family was worried because he is a young man that has jumped into a relationship with someone that has had children he did not look back once though that is what tells me this is true he has never complained or even had regrets. Ok well MERRY CHRISTMAS everyone.

God bless you all and pray for those that are in need.

November 15 2003

Well hello and yes I know it has been along time since I have posted. I am sorry for that but time flyes when life is great. My health is wonderful other then the hernia still and a few more blockages. The kids are great also and getting big. Cecile my oldest just had her 11th birthday and William's is coming up in December. Its amazing how fast they grow and the best part is I am alive and well to see them grow. My boyfriend Damian and I have been together 5 months and wow I have never been so happy I am glad to say he is here for keeps. We are talking about marriage and children I have talked with Dr. Taylor about pregnancy and he said its a go. I am soooo happy to have that choice still. I almost made the decision to have my tubes done a few years back but I am so glad i did not do it. I am still waiting for my divorce and all that stuff. Due to spending over $5000 in the last year for lawyers fee's and still do not even have papers saying I am suspose to recieve child support I am looking to find another lawyer. I just cannot be a single mom on one income paying morgage and schooling stuff on one income. Its to hard and I can admit that. I have noticed when my stress level becomes high the chances of blockages become higher. I am not to sure why that would be because in that case I eat less. But Damian is there to help me money wise and mental wise. It is amazing that there is people out there that accept you for you and your family and are willing to jump into something not really knowing what there getting into. But not having any regrets. I did a talk with the U.O.A. which is the United Ostomy Assc. for Stratford .About the BCIR and I met a really nice woman by the name is Deanna who is doing a website for the London UOA and she has added me to her site. which can be found at       www.ldoa.net    there she has many links and helpful things for the ileostomates and also has put me up on the resource library . She has taken my story and pasted it there for others to read and learn. I can actually say I am tickled pink. Well thats about it for the updates here. I will hopefully have more soon and belive me when i say it will not take 5 months. LOL sorry  all ... so in the end GOD BLESS you all and have a great day!

July 7 2003

Well Hello there. Happy belated Canada's Day and welcome to summer. Things have been wonderful I have found this wonderful man that has been in my life for a little over a month now and WOW I feel great. He accepts me for me and accepts my children with me. Its amazing how sometimes you think life could not be better then bomb that special person comes into your life.He has just seen the sick side of me when I became very dehydrated and I am guessing a small blockage at first that then just wiped me out totaly. I think alot of it had to do with all the working and not much time for me to rest. But he was right by my side the whole time taking care of me making sure i had everything I needed to get well. I am still recovering but I am feeling a little better. I have decided to quit daycare and go back to school in September. I have always wanted to become a Teacher and I think now is the time for me to stop hiding from it and take the step.So now as of September the long haul will come. But I have lots of support so hopefully in a few years I will be standing infront of a classroom teaching others about life.Anyways  once I figure out this computer a little better and get a few articles scanned I will be posting the articals the city here has done on me. But for now I am still fumbling around trying to figure it all out. Well god bless and remember SMILE!

June 3 2003

Hi there it has been awhile so I thought i better get my butt in gear and update you all. My health has been pretty good. I have had my bad days but its more to the fact of working 3 jobs trying to keep up with the bills and children. I think my body is saying Casey slow down. Soon enough i want to go away for a few days rest and relax. I was in the paper last wednesday and i will be trying to post it on here some how . I did a story on me  my life and how i have dealt with the diease.I think it went pretty well. On Sunday June 1st was out Heel and wheel a thon here in Stratford Ontario. It was a good turn out and it was a wonderful day. I can actually say i have walked that river over 100 times but on Sunday it was a most wonderful feeling when i walked over the finish line. Another newspaper can and did another article on me and a few others. I am looking forward to reading that one also. I cannot wait to see other younger ones to come out and to actually say Yes I am sick and Yes please help.

I think if people open up and start to talk about this we would all be able to help find a cure faster because then other people would  would reconigize this disease and say wow we need to help these people. Well my fingers are crossed. Anyways have a great day

God Bless

April 21 2003

HAPPY EASTER ALL GOD BLESS..

These last few weeks have been wonderful for me. Alot of things have been going my way I guess it is a good luck streak. I spent Easter with my 2 children Cecile and William  and my parents uncle and boyfriend. The day went perfect no complaints from anyone.My health is doing ok I am thinking I have a small blockage on my right side somewhere took a chance with some lettuce I guess my body was running to fast and could not break it up.But I am drinking lots of fluids and my children are helping me out with the little chores so mommy does not have to move much.Things seem to be getting better for me so I am keeping my fingers crossed. I hope all of you had a wonderful Easter also  God Bless you all.

March 30th 2003

Well things have been pretty good. My body is slowly recovering from the lest few rough weeks. I am still a little behind but slowly getting there.What ever is causing the dehydration is driving me nuts but I am trying to keep on top of it. I notice I feel it more at night so I drink more then . My weight has stayed now for a week so I am hoping it will not gain or lose. I have been adding salads back into my diet but I know to chew chew chew it is a nice treat now to get more of the other veggies in. I have also found a taste for Mandarin Oranges I have no problem with them at all so thats a plus also. I have days where food is great and no problem eating then on other days i can hardly swallow without gagging. But I get over it. Other then that life has been great.  I have to say I am still flying high on happiness. No regrets  on anything. Please say a prayer for My little frind Ashely as her site has not been updated in awhile and i am worried. She needs all the strengh she can get the power of prayer will help her and her mom over come all. God Bless you all have a great week

March 14 2003

Well first off this has been a long last few months things have been tough here and there but I am still here to talk about it so thats a plus. I became ill a few weeks ago and after vomiting and charlie horses and extreme pain I gave in and went to the doctors amd he ran a few tests. My potissium was very high sodium was very low and my white cell count was high also. My doctor is not sure why this would be and recomended I see my other doctor in London. But I have been a little scared so needless to say I have been at home working it threw. I noticed the other day my intestine was coming threw my stoma. Not a large amount but enough to notice. I had alot of pressure somewhere pushing it out so I am guessin I had a nice blockage somewhere. I was very dehydrated so that was my hint also.Today I drained early in the morning and I was right back up there 25 minutes later in pain so I figured here we go its coming threw and yes I was right it has passed. Now sure what cause it but  hopefully by tonight I will feel alot better. I have some exciting news though. I did a little talk with our Stratford Perth Chapter Crohns and Colitis foundation  just to let others know what other options are out there. I know that alot of people are scared to have the surgery and to have a bag on there side. So I talked to them about the B.C.I.R and it was great. After the meetin was over I was asked if I would like to  volunteer to be the Heel `n` Wheel -a- Thon Honorary Chair. Meaning I will be promoting the event. I hope to see alot of my friends and family there to help me out in anyway. Well I am sure I have bored ya all out. I will keep you posted. Have a wonderful day and God Bless.

December 21 2002

Well all things are getting better. I was blessed with a nice little small bowel obstruction last weekend. Spent 2 days in the hospital only to be admited the next morning with the Norwalk virus not a pleasent thing wears you right out. And belive me when I say I do not curse it on anyone.But now a few days before xmas got all the shopping done kids are taken care of now I just need to take care of myself. I am still very happy with all my decisons I have made in my life and I will contuine to feel this way. Merry xmas All and thank you

Hi all today is December 2 2002

Everything is just wonderful life is treating me well. My health is better I was sick for a few weeks but kept it under control. I had a very bad blockage that lasted 2 weeks but did not go to the hospital for this one. First off no time to get off work and second it is harder now being sick and dealing with the kids alone.

I know now I will watch more carefully once again what to eat and what not to eat. Things are once again reacting differently. But hey it takes time. Single life is ok lonely though but it was my choice to make a new begining. Besides there is that someone special out there that will accept me for me.

Ok well god bless you all and have a wonderful day

UPDATE: October 23 2002

Hi there all. I am doing great. I have turned over a new leaf in life. I have filed for seperation. I just have decided that life is short and I do not have time to be hurt in life. Since his affairs I have not been able to live life the way I would like to so much hurt and anger just keeps building. There is alot in life people hide and keep hush hush because there scared and do not want to get hurt. I have learned in the last year that somethings you cannot fix. But others you can fix. Even if it cause pain and hurt it is ok to stand up for yourself and be YOU. I plan on making the best of my life now and nothing will make it bad again. So please remember stay strong and do not hide.It solves nothing,.God Bless you all.

UPDATE::::Sept.20/2002

Things were pretty tough this week. A little peice of bean thought it would be kind and stick around awhile.. Needless to say it decided to leave yesterday. This blackage was pretty bad alot of pain in my back and in my stomach major cramping and dehydration and fever. But it is all over with now it onlt took 3 days to pass. Of course stubborn me though just ignored it and blamed it on other things,It seems when I am sick now people think I am this little baby that needs to be told what I can eat drink or do. But I did tell my hubby after it had passed. Anyways my weight has dropped a bit more and now I need to start to see a nutritionist but thats ok. He is still blaming the passing out and falling over on the rapid weightloss. So now we need to figure out the rapid weightloss thing..... Hope everyone is having a wonderful Sept..

God Bless and Take Care

UPDATE::::: Sept.3rd 2002

I got my first case of POUCHITIS it is not to bad but after about 2 weeks of being sore I called my family doctor. I was having alot of dizziness and feeling sick. I was falling down still. I tell you I have seen those stars everyone talks about. He did blood to find my Hemo was low and my white cells was a little high.Also my blood pressureis still low. So I called my ostomy doctor who verified my question of Pouchitis . I am on Flagil now to control it and it seems to be working. I hope everyone enjoyed their summer. I know I did....

Went to see my family doctor yesterday because of dizzy spells and falling down.

They ran some test to find out what is going on but my blood pressure is extremely low.

I have to start drinking boost or insure to get my nutrients but there so expensive so I opted for the carnation drinks and a few vitamins.

But that is also to help the weightloss. It still seems to be coming down.

Other then that all is well. Thank you to everyone that has come to see my site and sent me ideals and just said hi.